Genomic Research and Data-Sharing: Time to Revisit Australian Laws?

Genomic Research and Data-Sharing: Time to Revisit Australian Laws?

This article analyses the ethical and legal aspects of data-sharing and genomic research. It begins in Part II with an overview of the nature of genomic information, and whether it is exceptional when compared to other forms of health information. Part III considers the role of data-sharing in genomic research, with the importance of public trust in supporting genomic research considered in Part IV. The Australian regulatory framework for data-sharing in genomic research is considered in Parts V and VI, with reform options discussed in Part VII. The article concludes that advances in genomic research and the complexity of the current regulatory framework make it timely to review Australian laws to ensure that they maintain their relevance for this rapidly developing field of research.

Jowett, Stephanie

Dallaston, Elizabeth

Bennett, Belinda

The University of Queensland Law Journal; Vol. 39 No. 2 (2020): The University of Queensland Law Journal; 341-369

1839-289X

0083-4041

The University of Queensland School of Law

2020-08-19

Copyright (c) 2020 The University of Queensland Law Journal

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Peer-reviewed Article